1
I was a prisoner inside my own body. I felt desperate, angry, stupid, confused, ashamed, hopeless and absolutely alone.. and that this was of my own making. I could speak at home, how come I couldn't outside it? I have never been able to find the right words to describe what it was like. Imagine that for one day you are unable to speak to anyone you meet outside your own family, particularly at school/college, or out shopping, etc., have no sign language, no gestures, no facial expression. Then imagine that for eight years, but no one really understands. It was like torture, and I was the only person that knew it was happening. My body and face were frozen most of the time. I became hyperconscious of myself when outside the home and it was a relief to get back as I was always exhausted. I attempted to hide it (an impossible task) because I felt so ashamed that I couldn't do what other people seemed to find so natural and easy - to speak. At times I felt suicidal.Carl Sutton
2
When I am in a situation where I feel uncomfortable about speaking but it is necessary for me to speak, or if I feel 'put on the spot' my voice sounds strained, really weird, and it feels as if I have no control over how I sound in these situations. Sometimes then my voice is barely audible and I am frequently asked to repeat myself. Attempts at speaking are often embarrassing, shaming experiences for me. I sound quite different when speaking with someone I am more relaxed with, but I don't like the way my voice sounds at the best of times; I was horrified when I heard a recording of myself. Because of this inhibition about speaking, I have never learned to project my voice or to use it effectively. I often feel that I could no more use my vocal cords to break a silence, to get somebody's attention or to initiate an interaction than I could run through fire or do something dangerous in my life.Carl Sutton
3
Aloneness — that is what SM feels like to me. Isolated, alone, separated, left out as I silently stand by watching others experience life while the words freeze inside me, afraid to speak up or join in a conversation. Actually feeling the anxiety shaking inside my chest as I try to get up the courage to speak to someone or call or text a friend. SM feels like the child standing alone behind the door watching the other kids in the playground — afraid to ask, 'may I play?' It feels like the teenager standing silently against the wall, listening to classmates laugh and chat, invisible to everyone and wondering what it would be like to have a friend. It feels like the 50-year-old office worker, alone in her cube while others chat and laugh in the aisle, still left out. I live inside a shell, a mask that looks like me, but isn't me. I am in here, but it is really hard to let others see. I'm so grateful for the few dear friends I have now. Most people, though, only see the shell and assume I'm aloof and uncaring because I am quiet. I feel very deeply. I feel others' joy and pain intensely, yet they rarely know. I'm not quiet because I am uncaring. I'm silent because I'm afraid. .Carl Sutton
4
As a teenager and young adult, I found being mute intensely isolating and dehumanizing. I felt truly like I was just a pair of eyes and ears - an entity without a body, without a face, and without a mouth. I felt as though I was barely a physical being.Carl Sutton